HELIOS members will have a strong presence at ASCAT 2026, taking place in London from 7–9 October 2026, with numerous oral and poster presentations showcasing research from across the haemoglobinopathy community. Throughout the conference, HELIOS members will present work spanning a wide range of topics, including sickle cell disease, thalassaemia, diagnostics and variant curation, gene…
HELIOS
HELIOS is delighted to return to ASCAT 2026 in London this October, with both a dedicated scientific session and an exhibition booth, marking our final participation at ASCAT in this format during the current HELIOS COST Action. Over the years, ASCAT has become an important meeting point for the international sickle cell disease and thalassaemia…
Written by Milana Trucl, Sciensano, Belgium In July 2026, I spent three days in Bari at the HELIOS Training School on “Ethics, Gender, Regulation and Use of Data.” I arrived with a presentation on the European Health Data Space (EHDS) and left with a much richer understanding of one of the many realities that will…
Written by Dr Adela Perolla, Children’s Hospital Zagreb, Croatia My testimony from HELIOS Action Training School — “Ethics, Gender, Regulation and Use of Data”, Bari, 1–3 July 2026 I left for Bari thinking I was going to a course. I came back with a list of questions I had never asked myself, and that from…
The HemaFAIR and HELIOS COST Action successfully concluded the Federated Data Analysis Training School & Hackathon, held in Ayia Napa, Cyprus, from 11–14 May 2026 at the Alion Beach Hotel. The event brought together researchers, clinicians, data scientists, and FAIR data experts from across Europe and beyond for an intensive hands-on training focused on federated…
